Presentations

Presenter, "Best Practices for Early Engagement with ICER (and other HTA bodies)," CEVR’s Annual Methods, Policy, & Data Symposium
Panelist, "Should I Get the COVID-19 Vaccine?," American Autoimmune Related Diseases Association (AARDA) Autoimmune Newscast

Panelist, "Challenges in Communicating Uncertainty and Benefit/Risk," Medical Device Innovation Consortium (MDIC)
Presenter, "Through the Eyes of our Patients and Families," Tufts Medical Center Medicine Grand Rounds
Presenter, "Sharing Scientifically Sound Info During COVID-19," Clara Health Advocate Training Webinar
Panelist, "Managing Stress & Promoting Well-Being in the Midst of the COVID-19 Pandemic," AARDA National Webinar
Keynote Speaker, Arthritis Foundation Advocacy Leadership Retreat (postponed due to COVID-19)
Plenary Panelist, "What Does it Mean to be an Advocacy Champion?," Arthritis Foundation Advocacy Leadership Retreat (postponed due to COVID-19)

Panelist, "Working Together to Improve the Patient Journey," MIT NEWDIGS Design Lab
Keynote Speaker, MIT NEWDIGS Design Lab
Panelist, Perspectives on Step therapy, Massachusetts Legislature “Fail First” Policy Breakfast
Presenter, "ICER 101: Get Engaged for the Arthritis Review," Patients Rising Webinar
Presenter, "Stepping Over the Line: The Burden of Step Therapy on Patients," CEVR’s Annual Methods, Policy, & Data Symposium

Presenter, "Through the Eyes of our Patients and Families," Tufts Medical Center Medicine Grand Rounds
Presenter, "Can Patient-Centeredness and Cost-Effectiveness Coexist?," CEVR’s Annual Methods, Policy, & Data Symposium
Keynote Speaker, Arthritis Foundation Platinum Ambassador Assembly

Presenter, "Through the Eyes of our Patients and Families," Tufts Medical Center Medicine Grand Rounds

Presenter, New England Comparative Effectiveness Public Advisory Council (CEPAC) Public Meeting
Presenter, "The Power of Social Media," Arthritis Foundation Advocate Webinar Series
Keynote Speaker, Arthritis Foundation Advocacy Summit

Presenter, "Through the Eyes of our Patients and Families," Tufts Medical Center Medicine Grand Rounds
Presenter, "Making Your Advocacy Impact on Social Media," Arthritis Foundation Advocacy Summit

Presenter, "Telling Your Story: Making an Impact on Legislators and Beyond," Arthritis Foundation Advocate Webinar Series
Presenter, "Telling Our Story Through Ambassadors," Arthritis Foundation Annual Meeting
Keynote Speaker, Baxalta Pharmaceuticals Walk to Cure Arthritis Team Kickoff

Presenter, “Patient and Health Care Professional Perspectives on Quality of Life and Unmet Needs of People With Chronic Neutropenia: A Survey-Based Assessment," poster presented at the 64th American Society of Hematology (ASH) Annual Meeting and Exposition
Presenter, "The “Living With Chronic Neutropenia” Survey: Experiences and Preferences of People Living With Chronic Neutropenia," poster presented at 2022 National Organization for Rare Disorders (NORD) Breakthrough Summit
Panelist, "Navigating Your Career + Autoimmunity," Autoimmune Association Autoimmune Summit
Panelist, "Living with Rheumatoid Arthritis," Rheos Medicines Patient Speaker Series
Presenter, Massachusetts Rare Disease Advisory Council (RDAC) Meeting

Panelist, "Driving Patient Engagement in Medical Device Clinical Development," MassMEDIC Webinar
Panelist, "Rheumatology Patient Experience Panel," Autoimmune Association Autoimmune Summit
Panelist, "How we Can Use our Learnings During the Pandemic to Increase Access and Affordability to Patients," MassBio Patient Advocacy Summit
Presenter, "Best Practices for Early Engagement with ICER (and other HTA bodies)," CEVR’s Annual Methods, Policy, & Data Symposium
Panelist, "Should I Get the COVID-19 Vaccine?," Autoimmune Association Autoimmune Newscast

Panelist, "Challenges in Communicating Uncertainty and Benefit/Risk," Medical Device Innovation Consortium (MDIC)
Presenter, "Through the Eyes of our Patients and Families," Tufts Medical Center Medicine Grand Rounds
Presenter, "Sharing Scientifically Sound Info During COVID-19," Clara Health Advocate Training Webinar
Panelist, "Managing Stress & Promoting Well-Being in the Midst of the COVID-19 Pandemic," Autoimmune Association National Webinar
Keynote Speaker, Arthritis Foundation Advocacy Leadership Retreat (postponed due to COVID-19)
Plenary Panelist, "What Does it Mean to be an Advocacy Champion?," Arthritis Foundation Advocacy Leadership Retreat (postponed due to COVID-19)

Panelist, "Working Together to Improve the Patient Journey," MIT NEWDIGS Design Lab
Keynote Speaker, MIT NEWDIGS Design Lab
Panelist, Perspectives on Step therapy, Massachusetts Legislature “Fail First” Policy Breakfast
Presenter, "ICER 101: Get Engaged for the Arthritis Review," Patients Rising Webinar
Presenter, "Stepping Over the Line: The Burden of Step Therapy on Patients," CEVR’s Annual Methods, Policy, & Data Symposium

Presenter, "Through the Eyes of our Patients and Families," Tufts Medical Center Medicine Grand Rounds
Presenter, "Can Patient-Centeredness and Cost-Effectiveness Coexist?," CEVR’s Annual Methods, Policy, & Data Symposium
Keynote Speaker, Arthritis Foundation Platinum Ambassador Assembly

Presenter, "Through the Eyes of our Patients and Families," Tufts Medical Center Medicine Grand Rounds
Presenter, New England Comparative Effectiveness Public Advisory Council (CEPAC) Public Meeting
Presenter, "The Power of Social Media," Arthritis Foundation Advocate Webinar Series
Keynote Speaker, Arthritis Foundation Advocacy Summit

Presenter, "Through the Eyes of our Patients and Families," Tufts Medical Center Medicine Grand Rounds
Presenter, "Making Your Advocacy Impact on Social Media," Arthritis Foundation Advocacy Summit

Presenter, "Telling Your Story: Making an Impact on Legislators and Beyond," Arthritis Foundation Advocate Webinar Series
Presenter, "Telling Our Story Through Ambassadors," Arthritis Foundation Annual Meeting
Keynote Speaker, Baxalta Pharmaceuticals Walk to Cure Arthritis Team Kickoff